Monday, May 17, 2010
I'll take the first watch...
Thursday, May 6, 2010
Waiting...and waiting...and waiting...
Yesterday I went with mom while she got her hair done and had a great time just shooting the, er, shtuff, with the salon ladies and ended up treating my self to getting nails done while I waited. I feel less like a 'real' woman every time I come home from the doctor's office that it was nice to do something really girly for myself. It's funny, but I bet most women never stop to think how much of their self and 'womanhood' is tied into their reproductive organs. Somehow you never consider how much of you is made up of the hope of having children, of functioning fundamentally how a woman should until everything gets turned upside down. I'll be honest with you...I haven't blow dried and straightened my hair since I was faced with this diagnoses and lost my job all in the same day...I've put on make-up, once, maybe? And then only half-assed. It's just hard to make the outside look pretty when you feel so screwed up internally. It's so hard to sleep at night sometimes, like I can feel the many cysts on my ovaries just by knowing they're there when they shouldn't be. That and being separated from the person I love most in the world, having to deal with the ridiculous, petty, selfish behavior of alot of people around me lately, it just takes a toll. I truly wish that people would just step outside themselves for just a moment and realize how what they do or don't do impacts those around them. But the truth is most people are easy participants in the surface....what doesn't really require much of them, but as soon as a need arises for some kind of selflessness, a sacrifice, an emotional investment, you might as well be in the Mohabe Desert...completely isolated. So much in our lives is taken for granted and it just may suprise you that in a time of need, it is never the people you hoped would be there for you that show up....and sometimes it is then that you find support in the most suprising of places. This makes me sad, but is unfortunately not something I can change. Just a passing thought, but it matters not to a dead person that you showed up to their funeral...i.e. save yourself the regrets that matter to no one and live in such a way that you nurture the relationships set before you at every opportunity.
Tuesday, May 4, 2010
The stress of all this is absolutely taking a toll on me...I'm exhausted already and I haven't even had the procedure yet. I have to take off my ring for the procedure as well which is like going in without even the tiniest security blanket.
On a completely separate note, the favors for the wedding came in today and they are absolutely fabulous...too bad for you all those who sent in "no" response cards! You are missing out my friends, missing out. Tomorrow I'll be meeting with the salon that will be doing all the beauty for me and my girls the morning of the big day and putting deposits down...maybe I'll try to get my eyebrows waxed while there, Lord knows they need it!!! Mom suggested getting something else waxed to suprise the surgeon friday, but I think I'll pass on that one...my apologies for those of you offended easily ;-)
Bought mom's Mother's day gift today...can't wait for her to see it :-) Wish I wasn't going to be incapacitated that day but at least we'll all still be together. I really don't know how I'd do all this without her right there, walking me through all of it. I am so blessed to have a mother like her, who will drop everything to be by my side, which does more for my spirit than I think she knows. The value of something like that is just inestimable. It's amazing what God has brought to me in this difficulty...my mom who's always been there and will continue to be, Clarke who heals my heart with love and laughter when I am broken, and a friend and sister who, though we have never met, has sent daily encouragement that has bolstered me beyond understanding. I'm starting to think of them as my earthly trinity of healing lol.
Sigh...bath sounds good tonight. Off to soak.
A Crack in the Armor
It's raining today so I've given up hope attempting anything with my hair...not that the lab techs will really care anyway...it would just be nice to pretend for at least another 30 minutes that all is as it should be and I'm just off to run some errands. Ok, that's all for now....more probably after this whole shpeel is over.
Monday, May 3, 2010
Beginnings
- Gotten engaged to the most wonderful man I've ever met
- Performed my first supporting role in a professional musical production
- Been invited to dance with the NYC Rockettes at Radio City for 1 week in July
- Bought my first apartment with my fiance, Clarke
- Lost my job at Music and Arts because they couldn't wait for me to move anyway
And most recently (and the driving force behind this blog)
- Been diagnosed with Endometriosis, HPV, and subsequently Stage 1 Cervical Cancer
It is all this and many more small things that have me sitting here at the moment...at the edge of my next adventure and foray into the unknown. It is here that I hope to be able to share with you my journey to wife, Rockette, and cancer survivor...to being a better, stronger, more humble woman than I am now.
The most recent news begins with the scheduling of my first major procedure to fight this Endometriosis (here on known as 'endo'...I decline to give this incurable disease the respect of it's complete moniker) is a laproscopy I have been laboring to get on the calendar for over a week. Due to God's abundant grace, this procedure has been scheduled for this friday, May 7th at 8 am at St. Jospeh's Hospital. If it had not been for His hand in all this I would have been waiting close to 4 months to have this procedure which would have been close to unbearable. I am currently on over 1000mg of painkillers every day and am rather like a zombie due to this. This procedure will actually entail going in through 3 incisions in my abdomen around my belly-button and using a camera to view the scope of this disease's damage and also to laser away as much of it as possible and possibly remove some of the cysts on my ovaries that have been causing me so much pain. This may very well significantly lessen my dependence on painkillers and allow me to regain much of my pre-illness energy! So friday's the big day....fingers crossed. Clarke and Mom and Grandma will all be at my surgery and at home to help me get through the days afterward which will be difficult, as any recovery from abdominal surgery tends to be.
Tomorrow is a day filled with pre-op testing at the hospital and the on to my OBGYN to get things squared away before surgery friday.
As nervous as I am, it will be a special treat to see my hunny this weekend...the closer our wedding day gets, the longer the days apart seem to be.
Alright, enough for one night...there will be much more I promise you that. Life like mine never seems to get dull! Til the next time and the next leg of the Adventure...